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Wednesday, August 17, 2011

1 in 52

Today I found out I am 1 of 52 people who are in an a groundbreaking new treatment using stem cells.  I in 52?  I knew it was a selective group but I had no idea how small it was.  You all know I've been struggling with Crohn's disease throughout my adult life.  I have been on and off new allegedly "groundbreaking" medicines, some before they were even approved by the FDA, with little relief from symptoms.  Yes, I have been able to accomplish different life goals while sick but there are so many more that have just been slightly out of reach.  I'm hoping this treatment will truly be life changing. At the same time that I have so much hope I have to remind myself that this may not work.  Things may not change but they may.  Basically its scary and exciting at the same time.  The testing has been a roller coaster in itself.  Today I had to get 9 vials of blood taken.  It took two visit for them to even get blood from me.  The first visit last week I was poked five times with zero amount of blood.  The sad part is I don't even cry anymore.  I just suck it up and have a break down later in the day.  Ha. This visit I was only stuck twice and everyone cheered after it was over.  Tomorrow I go for an MRI.  Luckily its just a fancy x-ray so it should be pretty painless.  Also, tomorrow I start a lifestyle journal.  I will write down what I eat, how sick I feel, etc.  I have to do that for seven days.  After those seven days I have to take a two day break to prep for a colonoscopy. Then once I have the colonoscopy I can get my first infusion.  Hopefully that will take place at the beginning of September.  I can't wait to get the exact date so I can start a countdown!

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