Haute Times in the City
Tuesday, January 17, 2012
Carolina's Wedding Extravaganza
Thursday, August 18, 2011
Second Round of Testing
I was back at the hospital again today to get my second round of tests. Today was MRI day. I had to get an MRI of my chest, abdomen and pelvis. MRI are a little strange b/c you have so many restrictions to follow. Before you even can get into the machine you have to take off anything on your body that has metal because basically the machine is a big magnet. When you think about it almost everything you wear has metal on it. So for people who love accessories this is a huge pain in the ass. Jewelry, clothes and shoes all have to come off. You also have to wear a surgical cap to cover your hair. So I'm thinking crap, I have to go to happy hour after this! Haha. Anyways, after stripping myself down to the bare minimum I lay down and get ready to go into this tiny tunnel. If you are the least bit claustrophobic you are totally f*%ked. Apparently they will sedate you if you can't handle it but at this point I could care less what I have to do as long as I get these damn stem cells. The lady who was in charge of the MRI machine imaging told me I was her easiest patient of the day. This made me feel special b/c I know what a pain the the butt people can be especially when they are feeling bad. I really try to be as nice to the nurses, doctors and researchers as possible b/c they are the ones trying to help. Luckily I have recently encountered some amazing people. My doctor is wonderful. Her name is Dr. Abraham and she probably isn't much older than I am but she is super smart and knowledgeable. She is the one responsible for getting me into this study. She is basically my hero. So enough for tonight. I should get a brief break from the hospital until my final round of testing in few weeks. So hopefully I will get to see my friends, hug on my boyfriend and hang out with my brother this weekend.
Ciao my loves and thanks for the daily support. I really couldn't do it alone.
Ciao my loves and thanks for the daily support. I really couldn't do it alone.
Wednesday, August 17, 2011
1 in 52
Today I found out I am 1 of 52 people who are in an a groundbreaking new treatment using stem cells. I in 52? I knew it was a selective group but I had no idea how small it was. You all know I've been struggling with Crohn's disease throughout my adult life. I have been on and off new allegedly "groundbreaking" medicines, some before they were even approved by the FDA, with little relief from symptoms. Yes, I have been able to accomplish different life goals while sick but there are so many more that have just been slightly out of reach. I'm hoping this treatment will truly be life changing. At the same time that I have so much hope I have to remind myself that this may not work. Things may not change but they may. Basically its scary and exciting at the same time. The testing has been a roller coaster in itself. Today I had to get 9 vials of blood taken. It took two visit for them to even get blood from me. The first visit last week I was poked five times with zero amount of blood. The sad part is I don't even cry anymore. I just suck it up and have a break down later in the day. Ha. This visit I was only stuck twice and everyone cheered after it was over. Tomorrow I go for an MRI. Luckily its just a fancy x-ray so it should be pretty painless. Also, tomorrow I start a lifestyle journal. I will write down what I eat, how sick I feel, etc. I have to do that for seven days. After those seven days I have to take a two day break to prep for a colonoscopy. Then once I have the colonoscopy I can get my first infusion. Hopefully that will take place at the beginning of September. I can't wait to get the exact date so I can start a countdown!
Saturday, June 18, 2011
Saturday, May 7, 2011
Count Down to Costa Rica
Only a few days until I leave for a fabulous vacation to Costa Rica! I just started to pack tonight. I have a few more errands to run tomorrow and then I will be spending the rest of the afternoon at Marisa's parents annual crawfish boil. The next few days should be a blast.
Tuesday, March 15, 2011
My Triuphant Return to the Rodeo
photo caption - Holly, Alex, Greta and myself
For the first time in 7 years I was able to rejoin my BFF's at the Rodeo. I was invited by my friends to attend Tim McGraw. Most of ya'll (rodeo talk) are probably wondering why I stayed away for so long. If you have ever been to the rodeo you know its alot of walking around with little sitting down. Simply for many years I couldn't physically do it. Thankfully with my continued good health I was able to join back in the festivities. I cannot stress to you what a great time it was. We had wine, ate a lot of junk food and sang our hearts out with Tim. I even got talked into going down this crazy slide at the carnival. That was honestly the most fun I've had in years. I can't wait to go back.Thank you Holly and Greta! Love you forever!
Fun Bags for Summer
Hey guys,
I don't know about you but I am totally ready for spring. I have already purchased a few things but one of things on my most wanted list is the Jane bag from Elaine Turner. Please check it out online at www.elaineturner.com or come see me in the store for an upclose version.
Sorry for the short post but I am fighting a high fever and my body is aching like crazy.
Love Vita
I don't know about you but I am totally ready for spring. I have already purchased a few things but one of things on my most wanted list is the Jane bag from Elaine Turner. Please check it out online at www.elaineturner.com or come see me in the store for an upclose version.
Sorry for the short post but I am fighting a high fever and my body is aching like crazy.
Love Vita
Subscribe to:
Posts (Atom)

